I have a theory. If an immediate family member comes down with Alzheimer’s disease and you have enough resources to hire help to take care of them, it’s not the same, not even nearly the same, as having a family member with Alzheimer’s and becoming a 24/7 caregiver for years, with no respite.
I hope they speak of . . . . .
- Not enough money to fund the National Alzheimer’s Plan, as written. Why?
- Why no cure? If money is the problem, tell Congress to look in the mirror
- Family breakups
- Financial problems
- Stress related problems
- Caregivers not being able to afford the medication they need for themselves
- Caregivers not being able to afford the food they need
- Let them know millions of caregivers are watching a grown human being 24/7, and some for years
- Lack of ways to get respite
- Congress – what did we do to cause this? If we don’t know, why not? Is it money. If that’s it, look in the mirror.
- Why so many empty seats when a United States Citizen spoke to you about alzheimer’s? (Seth Grogan)
The last question might be this – if you have Alzheimer’s in your immediate family, are you or have you ever been the primary caregiver for at least 1 year? 24/7 with no staff helping you
Maybe some frustration in my post, but ya know what? That’s okay. I’ve witnessed Congress showing a little of that.
With every kick, push up, sit up or pedal, I am telling myself to Keep Going. When I sit to much, I am telling myself to give up.
“Keep climbing those Mountains Jack. One day when you get to the top of one, God will take you home, but until then, keep climbing.”
Doing what I can, with what I have, where I am.
I must remain fit if at all possible. It will take that to keep mom safe. I have learned that from others.
Thank you for sharing this with me Rhonda
Before the stress of caregiving, some questions may not have been asked or answered, some family situations, may not have been known. When you get closer to some of your family than you both before, some stuff you learn is not pleasant. Add that to the stress of caregiving and it’s like a pot of water, lid on, turned up. It will boil over.
Advice I have seen says leave that stuff alone. Yep, that’s hard to do. Leave it alone. Caregivers have enough stress already.
If one of the parties is telling you that you can rely on them, and you try and they fail at every attempt. It’s easier to go it alone. When those folks tell you they are going to help and they don’t show or call, wow. The safety of the patient and the caregivers health is key. The caregiver must remain healthy to take care of the patient.