I read a lot:
I wonder if this make believe scenario could happen. . . . . . The caregiver and the parent arrive at the doctors office, the caregiver made the appointment, the parent has alzheimer’s. A note is passed to the receptionist. Here is what is written on it.
Dear Doctor. I have been a 24/7 caregiver for my parent for six years. It’s been three years since my parent recognized anyone. Incontinence has been part of our lives for the last year and a half. The resistance towards me helping is growing. If I don’t help, my parent will just sit around in that situation for hours. In fact, it almost seems to sedate my parent. Doctor, my parent is five foot eight inches tall and weighs one hundred and sixty pounds, doesn’t stop, always on the move, sleeps occasionally, I never know when, never know how long. I have no resources, we barely get by, I have no help. I don’t want to put my parent in a home because I think they will handle the situation with chemicals (medication). I don’t want that, but, and this is a big but, I’m asking you to do the same, unless you can tell me something else that will solve this situation. Doctor, I’m tired, worn down, I need some sleep. I need some help, and yes I know that the more medication, the more chances of my parent falling. Doctor, I can’t help my parent any, if I am dead. Is there anything we can give my parent, that will help me get some rest?
The rapidly climbing number of those affected with AD includes a growing population of aging military veterans affected who may have an added risk for the disease as a consequence of traumatic brain injury, posttraumatic stress disorder, and/or service-related injuries.
The paragraph above was cut and pasted from the article the link below will take you to. (2014)
“Caring for an Alzheimer’s patient is a situation that can utterly consume the lives and well-being of the people giving care, just as the disorder consumes its victims.” » Leeza Gibbons
she came out on U.S.Highway 70 to tell me she was a caregiver for her mom, and that she, as the caregiver, was struggling some. She had not heard of the Alzheimer’s Association, so she took one of my cards and agreed to give me some feed back.
A couple of months later she phoned me to say she made the call, listened, heard something she liked and had already attended two support group meetings. The last time we chatted she is still involved with the Alzheimer’s Association.
This happened in 2013 while I was crossing America.
I can’t remember where this was, but it was there, over 3000 foot of bridge, no space for Wilson. We wondered what we would do, how will we safely get across it, but it soon came to me. I realized that all the time standing there wondering, that not even one vehicle had passed.
We started walking and made it to the other side, no cars, no trucks, nothing. Those were some kinda good times, oh my gosh, they were.
My hope for anyone reading this, is that one day you come upon this bridge, and you get to cross it.
In 2015, I drove to Goffs, California, drove just inside the Mojave National Preserve, parked the car, and jogged about ten miles, on Lanfair Rd. It was beautiful there and the weather was mild.
Several years before that I traveled many miles, at night, as a lone backpacker in Georgia, Tennessee and North Carolina. Alone, maybe because not many really want to be out there walking around at night.
Until recently, when my mind would drift to places I want to return to, it would be the Mojave, hands down.
Now, not so sure anymore, the night stuff is beautiful, and very exhilarating, ah, but the desert is so peaceful, quiet.
My own experience exposed me to how awesome it can feel, to set a life changing goal, and achieve it.
In 2001 I purchased this book, did what it said, and lost 100 pounds in eleven months.
I purchased several, gave them away and saw success come to others. This one arrived today, mom dated it for me. This one will remain in my possession.
It’s been almost a year since he began eating in a healthy way. Once he started I never saw him falter, not even a minute. After some of the weight was gone, he started walking, mostly outside, but some on a treadmill. He lost 85 pounds, and says he feels better than he has in years. All new clothes were a necessity.
This is a great success story that I identify with.
Failed clinical trials and the continued lack of money for research leaves me with a feeling of pessimism. Bill and Melinda Gates getting involved is big to me, as they announced they are going to help scientists examine other theories. The longitudinal study in Columbia is exciting because they feel certain that everyone in the study will get alzheimer’s. The NIH is setting aside some money for new scientists, with fresh ideas. Thoughts of those things brings a feeling of optimism.
Hearing success stories from caregivers, accounts of them adapting, reading about laws being passed that may help them, and reading about the growth of support groups, memory cafes and more community involvement brings optimism.
Reading that our nation, as a whole, is eating healthier and exercising more is great news. That’s talk about prevention right there, good talk.
A lot of progress has been made in many areas. Necessity, sometimes, can be the mother of invention.
Posted in Alzheimer's, Caregiving, Inspiration, Prevention, Research, Treatment
Tagged Across The Land, Alzheimer's Association, alzheimers research, Bill Gates, Jack Fussell, NIH