raising awareness in the Bobomobile 

She called today and exclaimed “You are really moving fast Jack. You made it to Alabama in 1 day”

Then I burst her bubble. Yep, I told her it’s me and the Bobomobile (car). She laughed, I think she knew already.

Today I made it to:

the camera was resting on the windshield for this picture.

I left Roberta Wednesday morning for the purpose of relaxing. That didn’t last long. I stuck the “Walk” signs on the car and began stopping to see folks. I’ve gave out some cards and saw some old friends. 

I’m good with this. It feels okay to let the focus go back and forth. 

caregivers need rest

I copied the information below, from the Alzheimer’s Association website. 

Alzheimer’s takes a devastating toll on caregivers. Nearly 60 percent of Alzheimer’s and dementia caregivers rate the emotional stress of caregiving as high or very high; about 40 percent suffer from depression. One in five care contributors cut back on their own doctor visits because of their care responsibilities. And, among caregivers, 74 percent report they are “somewhat” to “very” concerned about maintaining their own health since becoming a caregiver.

some time raising awareness 

I’m spending some time back on the highway raising awareness concerning alzheimer’s disease. 

I spoke with my mom, my brothers wife and my brothers son and they were very willing for me to spend some time away. In fact, they have suggested this for me, several times. 

I am in Alexander City, Alabama tonight. No plans whatsoever. It will come to me.  

Charity Miles shirts . . . 

These arrived today. When I get back to mom’s, I will use these to raise awareness concerning this application. It’s a free application. I downloaded it long ago from the “Play Store” on my phone. Check it out at http://www.charitymiles.org

respectful persistence 

Caregivers need help. I have been told that by hundreds of them. I have read all of my life about “sharpening the saw”. 

I have told a lot of folks that caregivers need help. I have used Facebook, Twitter, WordPress and my mouth. 

I have no doubt my efforts have helped raise awareness, but I don’t know that I have ever helped anyone get help. 

The only real tool I personally have and would use to get help is respectful persistence. I would ask anyone I could think of. Maybe I would give up after a while. (no I wouldn’t)

1.800.272.3900 is the 24/7 Helpline at the Alzheimer’s Association. I would begin there. 

  1. Family 
  2. Friends
  3. Churches
  4. Senior Centers
  5. Chamber of Commerce 
  6. The Mayor
  7. The local newspaper 
  8. Meals on wheels 

My visit with the Alzheimer’s Association in Columbus Georgia

I enjoyed seeing old friends, and being inspired by the work they do. The energy in this crew made me realize some of mine was hiding. It’s time to get it back. 

My “Walk to End Alzheimer’s” shirt.

When I get to visit with the staff of the Alzheimer’s Association, I always have a list of questions. Im trying to learn as much as I can. 

An added bonus during this visit was meeting a volunteer. She has an alzheimer’s connection. 

he hugged me and began to cry

I visited with a caregiver. His wife had recently passed away with alzheimer’s disease. We spoke of her and the journey they had taken. He said family and friends had long since stopped staying in touch. He enjoyed our time together so much. He smiled a few times. We sensed that I needed to leave. He shook my hand, hugged me and began to cry. This man was 89 years old. 

Alzheimer’s disease really sucks, as does the loneliness that may accompany it.

my helping mom days

Mom is 87 years old and soon will be 88. 

I arrived at her home on January 24th. Her husband was experiencing serious health issues. He passed away on March 12th, of this year. I have been with mom every day since January, 24th. I spent night away to attend my grandson’s birthday party. When today ends, it will be 7 months. She needs help with a few things and I, along with other family members have provided that help. 

I fit in aerobic, light resistance workouts, abdominal excercise and stretching. During the 7 months here, I have managed 802 miles jogging and speed walking.  I have completed 5 counties on the “Around Georgia” project. 

I continue to read and post concerning alzheimer’s disease, for the purpose of raising awareness. 

ORMF – 70 years old

The Alzheimer’s Association Chapter in Oklahoma City drove me to ORMF in 2013. I had heard of Dr. Tang’s work concerning alzheimer’s disease. He was very kind and extremely patient. 

Here is part of article I found about Mr. Tang. It was a great day all around. Thank you Alzheimer’s Association. 

. Jordan J. N. Tang

C.1930-Present Induction Year
2008 Profession
Medical Researcher Oklahoma Connection
A transplant from Taiwan, Dr. Jordan Tang came to Oklahoma State University in 1955 as a graduate student in biochemistry.
Dr. Tang’s discoveries have led to breakthroughs in such diseases as stomach cancer, hypertension, AIDS and Alzheimer’s. Bio
Dr. Jordan Tang holds the J.G. Puterbaugh Chair in Medical Research at the Oklahoma Medical Research Foundation (OMRF), where he heads the protein studies research program. Dr. Tang came to Oklahoma from Taiwan in 1955 to attend Oklahoma State University, where he earned a master’s degree. Later, he received his Ph.D. from the University of Oklahoma and completed postdoctoral training at the Laboratory of Molecular Biology in Cambridge, England. In 1957, Dr. Tang joined OMRF, where he became one of the world’s leading experts on proteases, a group of proteins crucial to human health. Over the next 51 years at OMRF, his work has led to a deeper understanding of these vital proteins and to a new treatment for HIV/AIDS, hypertension and, most recently, an Alzheimer’s drug that is undergoing human clinical trials. Dr. Tang has lectured and taught at 50 universities on five continents and has published more than 200 articles in the world’s leading scientific journals. His research has been recognized and honored by the Guggenheim Foundation, National Institutes, Chinese Academy of Sciences, and the United Nations. He is the only Oklahoman ever to receive the Alzheimer’s Association of America’s highest research prize: the $1 million Pioneer Award.

dropped their bombs and went home

That is terminology I heard last night from a caregiver. This is her description. 

“I’ve been caregiving for mom, alone, for a little longer than 2 years. My only sibling, a sister, and her family reside approximately 200 miles away. They rarely visit. They have cared for mom for 2 days. When I returned from my 2 day rest they spent about an hour telling me I was a failure as a caregiver. My sister and her husband both joined in. I knew I was doing a good job, but it hurt anyway. Since then they continue to rarely call, and visit, and when they do, it’s mostly to question my ability to be a caregiver. 

The caregiver said during a recent call, her sisters husband started giving her the third degree. She said she stopped him dead in his tracks and told him to come get his mother in law, take her to their home, walk around in “caregivers” shoes for a few months, and then “we will sit and chat.”

She went on to tell me they are coming for a visit next week, and:

“If I see the bomb bay doors begin to open, I will have no problem showing them the door.”