If you’re not on a sinking ship, you don’t worry too much about a Lifeboat – #ENDALZ 

I have a theory. If an immediate family member comes down with Alzheimer’s disease and you have enough resources to hire help to take care of them, it’s not the same, not even nearly the same, as having a family member with Alzheimer’s and becoming a 24/7 caregiver for years, with no respite. 

My top takeaways from the Aging in America conference | The Memories Project – another blogger

https://memoriesproject.com/2017/03/23/my-top-takeaways-from-the-aging-in-america-conference/

What I hope the Advocates tell Congress for me . . . . .

I hope they speak of . . . . . 

  1. Not enough money to fund the National Alzheimer’s Plan, as written. Why?
  2. Why no cure? If money is the problem, tell Congress to look in the mirror 
  3. Family breakups 
  4. Financial problems 
  5. Stress related problems 
  6. Incontinence 
  7. Violence 
  8. Caregivers not being able to afford the medication they need for themselves 
  9. Caregivers not being able to afford the food they need
  10. Let them know millions of caregivers are watching a grown human being 24/7, and some for years
  11. Lack of ways to get respite 
  12. Congress – what did we do to cause this? If we don’t know, why not? Is it money. If that’s it, look in the mirror. 
  13. Why so many empty seats when a United States Citizen spoke to you about alzheimer’s?  (Seth Grogan)

The last question might be this – if you have Alzheimer’s in your immediate family, are you or have you ever been the primary caregiver for at least 1 year? 24/7 with no staff helping you 

Maybe some frustration in my post, but ya know what? That’s okay. I’ve witnessed Congress showing a little of that. 

An article describing the “real life” with dementia 

This is a great article 

http://dailyamerica.pw/dementia-they-dont-tell-you-these-things/

To keep going, Keep Going . . . . . #ENDALZ 

With every kick, push up, sit up or pedal, I am telling myself to Keep Going. When I sit to much, I am telling myself to give up. 

Mark said;

“Keep climbing those Mountains Jack. One day when you get to the top of one, God will take you home, but until then, keep climbing.”

In memory of P.C. Keith Palmer, Metropolitan Police. – Peter’s pondering

https://pollymermaid.wordpress.com/2017/03/23/in-memory-of-p-c-keith-palmer-metropolitan-police/#like-3022

Watch “Alzheimer’s Disease Clinical Trials: Dr. Laurie Ryan” on YouTube

I am a caregiver – I will continue on – I learned to do that by watching others . . . . . 

Doing what I can, with what I have, where I am. 

I must remain fit if at all possible. It will take that to keep mom safe. I have learned that from others. 

Watch “James Bay – Running (Live From Abbey Road Studios)” on YouTube

Thank you for sharing this with me Rhonda 

Caregivers learn of family stuff they did not know about . . . . .

Before the stress of caregiving, some questions may not have been asked or answered, some family situations, may not have been known. When you get closer to some of your family than you both before, some stuff you learn is not pleasant. Add that to the stress of caregiving and it’s like a pot of water, lid on, turned up. It will boil over. 

Advice I have seen says leave that stuff alone. Yep, that’s hard to do. Leave it alone. Caregivers have enough stress already. 

If one of the parties is telling you that you can rely on them, and you try and they fail at every attempt. It’s easier to go it alone. When those folks tell you they are going to help and they don’t show or call, wow. The safety of the patient and the caregivers health is key. The caregiver must remain healthy to take care of the patient.