With the steady uptick of folks responding to my post on WordPress, Facebook, Twitter and Instagram came that obvious question. The question arises because I constantly give out the Alzheimer’s Association 24/7 Helpline phone number and speak of them often.
To me if the Association was an individual, it would be Jerome H. Stone. His wife was diagnosed with Alzheimer’s Disease in 1970, which made him aware of the need for a leader in this field, so that caregivers, patients, prevention and research initiatives for better treatments and a cure could be united. This determination led him to help create The Alzheimer’s Association in 1979. He was a philanthropist, prominent businessman, and founding president of the Association. He passed away January 1st 2015 in Chicago, at the age of 101. (the words in italics came from Wikipedia)
From all I have learned about him, he was a man that took his job seriously and put the needs of the patients and the caregivers front row. I think he knew that connotation is important. Meetings, like the one taking place in Washington now, are serious in nature,for many reasons, one is where it is held, in front of the world. The millions of folks suffering, due to Alzheimer’s are constantly on the minds of the Alzheimer’s Association and the Advocates.
The Alzheimer’s Association is not any one individual. It is a nonprofit with a mission, and an obligation to the people they serve.
I have given out the Helpline phone number thousands of times and have received feedback. Never have I received negative feedback.
I’m under no obligation to the Alzheimer’s Association, or them to me. I let them know how I feel, if their is discomfort or comfort. The Alzheimer’s Association deserves that. I know they welcome constructive criticism, because they strive to be the best they can be. I know they also place value in getting kudos because it is feedback. Feedback is extremely important. They have always welcomed mine.
I have personally donated money many times to the Alzheimer’s Association. I have given 58 months of my life to the fight against Alzheimer’s disease. My dad passed away with Alzheimer’s Disease in June of 2000.
I am proud to give out their helpline number and website address. I am proud to quote the words they use in their printed material and on the website. I am proud to promote the “Walk to End Alzheimer’s” event.