I recently spent time with a caregiver and here is what she said;
“Thanks for telling it the way that we live it every day , day in and day out, sometimes for years. You speak of the lonely times, the financial hardship, the incontinence, the violence and so many of the realities concerning alzheimers. You tell folks how I can’t afford to eat right or purchase my own medication because I had to quit work. You tell folks nobody wants to visit anymore because they are tired of being near what alzheimers disease creates.”
I tell folks so they will have all the information available, so when they make decisions about what they will care about, alzheimer’s will get the consideration it should have.
We need to alleviate pain this disease causes to families and we need to respond to the possible bankruptcy in 2050, if nothing is done.
