Monthly Archives: April 2017

It’s over – “Across the Land”

Thank you to everyone that helped get us here and to those that followed us. 

“Across the Land” was a success. It purpose was to raise awareness concerning alzheimer’s disease and raise money for the Alzheimer’s Association. This project lasted for 4 years and 11 months. 

My jogging stroller’s name is Wilson. He carried stuff. I pushed. We were a team. Approximately 4000 miles with this guy.  The Bob Stroller Company made a lot possible. 

This car went approximately 20,000 miles wearing those signs. Her name was the Bobomobile. This 96 Chevrolet Lumina was donated to us by Marcia Bobo. 

The total, on foot mileage, was approximately 16,800 miles. 

The most rewarding part of the project, for me as an individual, were conversations with caregivers. 

Social media turned out to be a good vehicle for “Across the Land”  10,378 posts were made on the WordPress blog. Almost 18,000 tweets were sent out. An estimated 25,000 post were made on Facebook. 

Television, newspaper, magazine and radio interviews were many. Most of these interviews included a mention, and the number, of the Alzheimer’s Association 24/7 Helpline. 

  • Over 50 television 
  • Over 100 newspaper 
  • Over 20 radio
  • Over 6 magazine 

Over 3000 bracelets and cards were given to individuals that had never partnered with the Alzheimer’s Association. The cards and bracelets contained the 24/7 Helpline phone number. The phone number is 1.800.272.3900 and it can be called anytime. 

The “Charity Miles” application was a positive. It helped us raise money for the Alzheimer’s Association and it helped raise awareness by posting our progress on Facebook and Twitter. 

    Meetings with folks that were chosen by others occured. Some imparted knowledge, to us, some raised awareness in large numbers. 

    The total followers on WordPress, Instagram, Facebook and Twitter, as of this morning is 16,294. The total views of the WordPress blog, as of today is 248,165. Flyline Search Marketing built this blog and maintained it. Training for WordPress provided by Flyline. 

    Thank you for following an old guy that was simply trying to help raise awareness. Thank you for sharing your information with me. 

    At times, the day to day was not pretty. 

     The amount of help received along the way was remarkable. We know also help was there, that we will never know of. We are Grateful to be part of a project born with the idea to help in our global battle with alzheimer’s disease. Every 66 seconds, someone in America, is diagnosed with alzheimer’s. Their is no cure. My dad and millions of other folks, have died with this horrific disease. 

    I learned about success and I learned of failure. When something was successful, it was because of us. When something failed, it was because of me. I can live with that. I feel good in being part of success and I feel good about being able to live with my failures and get up and go again. 

    The catalyst for ending “Across the Land” is my responsibility to keep my 88 year old mom safe and help her keep going, as long as she can. Their were 4 in our family. Now it’s mom and I. We have each other and we have a support system that includes the Alzheimer’s Association.

    For now, I am part of another project. (mom) 

    This is a lot to post about the project, but the project and the folks involved deserve that. This was Epic! 

    The most important aspect of this was the thousands of folks we may have impacted, in any way, that helped their lives. Many of the caregivers, patients and supporters I met along the way, are no longer with us.  

    – – – – – – – – – – – – – – – – – – – – 

    Why Stop?

    After working at this awhile, I was given this advice.      “Educate yourself as much as possible and stay near the trenches.” 

    I took the advice and it was the right thing to do. So for the last few years, I followed it. I read as much as possible from the; 

    • National Institute of Health 
    • National Institute on Aging 
    • Alzheimer’s Association 
    • 3 alzheimer’s support forums with over 50,000 members
    • Articles sent to me via social media 
    • Articles I found through Google Searches 
    • Alzheimer’s bloggers 

    I used social media, texting, email and the telephone to remain in contact with;

    • Scientists
    • Geriatricians
    • Alzheimer’s Association staff
    • Caregivers 
    • Senior Care Facilities 
    • Alzheimer’s bloggers

    It was my choice to do what I do. 

    Mom’s care came along and added a new element. She is 88 years old. I made a decision on January 24th, 2016 to move in with her and her husband. He was in extreme pain from musculoskeletal issues. He passed away on March 12th, 2016. 

    I have not been the caregiver I want to be. Adding a caregiver role to my life has been more than I could handle, with the proper attitude. 

    Closing down “Across the Land” will allow me to put my focus on mom and my own health. I will be 67 years old in October, and as of late, have done a poor job of taking care of me. That is a must. My health is extremely important. Without it, as mom gets older and experiences normal aging, I would not be able to do what is needed. 

    I have a lot of knowledge concerning alzheimer’s. Some self taught, most handed to me as a gift, from others. 

    It’s best I stop for now. 

    Upon moving here with mom, at first their was no significance to the highway down the street. Long highways had become important to me. In 2013, I traveled across America, from the Atlantic to the Pacific Ocean. 2,594 miles were on foot. 458 in the passenger seat of a car. U.S. Highway 80 was once a cross country route. It now ends in the Dallas, Texas area. 

    She starts at Tybee Island, Georgia and, in the past, terminated in San Diego, California. 

    Here is a picture, near mom’s house in Georgia. Jogging west on Highway 80. 

    Dreams . . . . . 

    I had a few back in 2012. Others crept up. The ones listed below became realities. 

    • Run at Monument Valley 
    • Run at Leadville 
    • Run on Highway 101
    • Visit Monterey, California 
    • Run across the Great Smoky Mountains on Hwy 441
    • Run in the Mojave National Preserve 

    Many others come up.  Good times, Great memories. 

    Information about the Alzheimer’s Association Longest Day 

    http://act.alz.org/site/TR/LongestDay/TheLongestDay?pg=entry&fr_id=9704

    At age 21, she bought a ticket to Laos, no affiliation – the rest is history 

    you sure were something buddy 

    http://theonlinephotographer.typepad.com/the_online_photographer/2017/03/the-astonishing-catherine-leroy.html

    a good fishing memory 

    Put the Bass Tracker in and find a quiet spot. Toss plain oatmeal in a area confined by branches or grass. Tiny hook, cane pole. Sit there a few minutes and catch a dozen shiners. Crank up up the Black Max and head to a bend in the old river bed. Free line a shiner and let him go. We caught some beautiful large mouth black bass. 

    how much should I give back? 

    I’ve read or heard this formula, a few times. 

    168 hours in a week.  56 hours sleeping, 56 hours working, 56 hours left. 10% of the left over time is 5.6 hours per week.  So, 5.6 hours a week dedicated to giving back. 

    I found this quote a few minutes ago. I like quotes. Sometimes they help, maybe sometimes they don’t. Anyway, here it is. 

    “If you wait until you can do everything for everybody, instead of something for somebody, you’ll end up not doing nothing for nobody.” ~ Malcom Bane

    support groups on Facebook 

    Over 46,000 folks are members of the 3 groups that I participate in. Each post is from an individual. Dementia is the common ground of the groups. Most posts are from caregivers in various stages of the part of their life, that includes dementia. 

    My awareness is raised as I read, not only the posts, but also the comments, to the posts. 

    Some comments are about family and friends that no longer call or visit. 

    Many of the members no longer have a personal connection to dementia, but stay around to help others. 

    On many occasions, I have read problems stated and solutions presented. There is a lot of knowledge spread out among these members. 

    met him on his third ride across America . . . . . 

    we came upon each other near Seligman, Arizona, in 2013. He was close to finishing his third bicycle ride across America. He’s 27 years old now. He cried as we departed. He seemed concerned at my endeavor. 

    Tomorrow he loads up and is flying to a remote area in Africa to ride another 4000 miles or so. 

    If I remember correctly, his is the first bicycle I saw, with a belt, not a chain. I met another long distance rider in 2016 with a belt driven bike. He was 66 years old and riding Route 66.

    Today, a long distance bicyclist came through Roberta. He is heading to Pueblo, Colorado. 

    he disappeared from Facebook a year ago . . . . .  

    he emailed me this morning. Things are different now. I never suspected anything bad or sad. We met in 2013. “He called himself over the hill and fat.”

    He sent a picture. He lost 93 lbs. 

    • No surgery
    • No medication 
    • No doctors

    He said no to coming back on Facebook. Didn’t say why. 

    He runs 3 miles daily, 5 days a week. On the 6th day, he runs 6 miles. The 7th day, he takes off and walks. 

    We promised to stay in touch. 

    Today was his birthday. He is 61 years old. 

    During the time he was gone from Facebook I sent him an email one time monthly. I never missed a month. 

    He apologized for the abruptness of his departure. We spoke on the phone this evening. 

    Oh yeah, he is 5’10” tall and weighs in at 150 lbs.