Category Archives: Across The Land

thank you my friend, but let me explain 

we chatted for a bit last night. He mentioned two times about how my trip across America in 2013 went so well. I appreciate that. 

I struggled from the first step until the last step. I don’t mean physically. (one day my foot hurt for a few hours and another day I had a fever) The struggles I am talking about were mental. I found some relief every night when I would go to sleep. Look at what happened on that trip.

  • over 50 television interviews 
  • over 100 newspaper interviews 
  • over 20 radio interviews 
  • attended many “meet and greets”
  • met many high profile folks
  • visited three research facilities 
  • spent the night in over 40 senior care facilities, some 2 or 3 nights
  • over $27,000.00 raised directly to the Alzheimer’s Association 

Did I make that happen? No, I did not. Those things were set up by others. I ran, jogged, walked and talked.

Should folks call me to see how to set up this kind of stuff? No. Can folks ask me how things turned out?  Yes

I had a lot of failures and “We” had much Success. 

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a couple of more thoughts about raising awareness concerning alzheimers 

I don’t think caregivers need their awareness raised about the problems associated with Alzheimer’s disease. They may need awareness of how to make things easier and awareness about how to cope with things they can’t affect, but they don’t need any awareness raised about how hard caregiving is.

Neuroscientist who work at facilities that have a constant flow of money may need their awareness raised about neuroscientist that are having to move all over the country because of a lack of funding. Some neuroscientist may get something out of visiting facilities and observing Alzheimer’s patients, not just one time, but on a regular basis. You know, go to the trenches.

I could go on and on about this. But I think you get the gist. Personally, my awareness needs raising in several areas. I will work towards doing that.

I think the most important awareness that needs raising is that of lawmakers that earmark more money to the NIH.

P.S. I don’t presume to know the answers. I do read and I am prone to form opinions. I want to share my opinions, because they may help. Maybe they won’t. Thank you for reading. When I read information or opinions or listen to people, I chew up what they said and spit out the bones. I hope I don’t spit out bones that could have helped me. Just like you, I am doing my best.

Lawmakers need their awareness raised now 

The lawmakers don’t see enough anguish from patients and caregivers. They dont see the devastation to our economy. They don’t see enough progress from scientists. They don’t understand the scientists are limited by the money available to them. 

The awareness level of the lawmakers must be raised dramatically and fast. A sense of urgency must be created. 

We are all trying and we need more awareness raised. 

We need 3 billion a year starting now. We need the NIH to build critical paths for managing that much money. I think we all know we have the talent, the equipment and if we get money, ideas will come. 

The Alzheimer’s Association 

I am familiar with the website. Here is a link;

http://www.alz.org

I have read the information on Charity Navigator. Here is a link to that website;

http://www.charitynavigator.org

The Alzheimer’s Association has a helpline. The number is 800-272-3900.

I will continue to share this information with folks. Please take a look and see what you think. If you have any thoughts, please let me know.

To see, by category, how much the NIH spends on different diseases

https://report.nih.gov/categorical_spending.aspx

the bottom line on Alzheimer’s dollars 

According to the Alzheimer’s Association’s 2017 YouTube presentation, our group of 325 million people will spend approximately $259 billion dollars because of Alzheimer’s disease this year. Our group has decided to spend $1 billion dollars to stop that from happening again. 

We tried that ratio last year. It didn’t work. We tried close to the same ratio the year before that. It didn’t work.

The Alzheimer’s Foundation of America 

I read almost every word on their website. Here is a link;    

http://www.alzfdn.org

I read the information on Charity Navigator. Here is a link to the website;   

http://www.charitynavigator.org

The Alzheimer’s Foundation has a helpline. The number is 866-232-8484.

I will be sharing this information with folks in the future. Please take a look and see what you think. If you have any thoughts, please let me know.

MIT Sophomore Designs Winter Sleeping Bags for Syrian Refugees

https://www.nbcnews.com/news/world/mit-sophomore-designs-winter-sleeping-bags-syrian-refugees-n810826

a quote by Herman Melville 

Of all the preposterous assumptions of humanity over humanity, nothing exceeds most of the criticisms made on the habits of the poor by the well housed, well warmed, and well-fed.”     Herman Melville 

why this blog?

In my opinion, there are two things I could have done with this blog. 

  1. Created with pictures and words, an image of me and what I’m doing that is not real.
  2. Put down what happened, as it happened, and how I felt about it, no matter how it made things look.

Yep, I’m human, so there may have been a time or two I did not live up to number 2, but I never meant to do that, and do not remember doing it.

It’s really been a great tool. It probably has mostly helped me learn to express myself a little bit. I enjoy it now. This blog has had a little over 262,000 page views. If memory serves me correct, I think I remember seeing that it has been viewed in over 125 countries.

When I attended a meeting in Lake Havasu Arizona, I met a practicing psychologist. He told me that as he read each post, on this blog, he could tell where I was emotionally, and sometimes physically. He told me I should be proud of the amount of honesty he thinks he saw in my posts.

It’s not that I don’t care what others think of me, because I do. They are my friends. I think the most value I can give them is to be honest and let them see my struggles. No, not because I want them to feel sorry for me, but I want them to know that when they struggle, they are not alone.

Creative and awesome planning has not been my forte, Moving forward, falling and getting back up and moving forward again, has been. I’m persistent. 

I look forward to rest every night, and I look forward to each new day.

“When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and could say, I used everything you gave me”     Erma Bombeck