Category Archives: Advocacy

Professional Advocate – lessons for me

Assuming has not been good for me. I’m getting better at not assuming, but like so many things, this is a work in progress.

Trying to understand the process concerning the National Alzheimer’s Plan and the Georgia Plan had me puzzled. After lingering with my assumptions for months, I phoned a professional advocate.

She explained, gave me links and enhanced my knowledge. Wow, the time I spent with misconceptions. Hopefully, I will learn from this.

do lawmakers pass so called letters of intent? do they forget about them?

It seems to me, they might sometimes.

I think I’ve noticed that a lot of, so-called letters-of-intent, pass unanimously.

I think I have also noticed, that everyone runs around congratulating each other afterwards, even though no real action, that may help people, has been taken

Yeah I’ve gotten excited about letters of intent too.

I think sometimes nothing comes of them, but every once in awhile something does.

Trying to find a place to see how the letter of intent is progressing, can be very hard, and sometimes when you do, there have been no updates.

This thought process has made me want to take a look at how I raise awareness. Do I really look at how beneficial what I do is? Are there parts of it, that are just hype?

I want to do that, the self-criticism, if there is some, should only help me.

Thank you for reading my blog.

what confounds me about lawmakers

is them having a committee meet, have expert witness speak and only a couple of the lawmakers show up. I just don’t think they really appreciate or understand the importance of hearing from folks in the trenches. I don’t understand this. I know they have much to do, but something is just not right with this. If you let someone come speak, it certainly must mean you want to hear them, but then some seats are empty.

This post is not meant to be sarcastic, I just really don’t understand. I will try to learn more.

$7.7 trillion dollars because of Alzheimer’s disease

January 25, 2018 (Washington, D.C.) Recent research data developed by IHS Markit and the Partnership to Fight Chronic Disease (PFCD) projects the cumulative total cost of Alzheimer’s disease between 2017 and 2030 will be $7.7 trillion – $3.2 trillion in health care costs and $4.5 trillion in the value of unpaid caregiving.”

The paragraph above came from the article this link will take you to. Thanks to Sissy Bowen for posting this on The Caregivers Companion Facebook page today.

the meeting went well yesterday

They have both been around alzheimer’s for a long time, over 28 years of combined service.

My nephew picked up mom for the afternoon so we could chat.

After the meeting, we were ready for the conference call and it went well too, ten years as a 24/7 caregiver and another ten as a volunteer. K. is full of ideas and she’s tired and ready for change.

Can’t say anymore right now, but opposing goals present opportunities, sometimes headaches.

Mom’s safety must, and will remain my highest priority, no matter what occurs.

What’s wrong with strategies? – Alzheimer’s

Maybe nothing is wrong with them. The National Alzheimer’s Plan is a strategy. It’s hard for me to tell if it’s worthwhile or not. Some articles speak of “notable accomplishments” that resulted from the plan. I haven’t read anything that spoke negatively about it.

I’ve been told, and I think the advice is good, to read things for myself. I haven’t read any results myself. I haven’t even looked. It would be easy to say that it’s not worth the paper it’s written on, but I can’t do that. I need to hunt for the info, do the legwork, so to speak.

Now is a good time to fish or cut bait. The “Georgia Alzheimer’s Project” is a strategy, and I need to understand that one too.

Do I agree with the Georgia Alzheimer’s Project? I have no idea, the name sounds good, but I don’t know. I’m going to try and find out if it seems good.

Some folks have told me that some strategies are put in place to pacify, and never result in solutions.

Strategy definition – a plan of action or policy designed to achieve a major or overall aim.