Category Archives: Alzheimer’s

I asked myself this the other day . . . . .

Like many nights, night before last something woke me, not sure what, but a question came to mind. What is my best advice to a new caregiver?

Ian Kremer posted this a few hours ago, it’s a graphic, does the work of a lot of words.

My best advice for a caregiver, yep, get mentally tough.

Scientists- Alzheimer’s- Beth Stevens

you’ve seen one caregiver, you’ve seen one caregiver #ENDALZ

Many times the quote has been said . . . “If you’ve seen one alzheimer’s patient, you’ve seen one alzheimer’s patient.”

Is it the same for caregivers? Of course it is. Circumstances of all kinds exist.

For me, I’m thinking, this will be a “work in progress” event.

Up to now, it’s going well.

appreciating the National Institute of Health

Trying to learn more took me to the NIH Categorical Spending page this afternoon. It’s setup by disease in alphabetical order.

Just looking at the amount of disease names left me in awe of the responsibility they have.

Here’s a link to the page I was studying . . . . .

https://report.nih.gov/categorical_spending.aspx

a new direction for me personally

Throwing the Starfish back in the water, to me, is a metaphor for helping 24/7 caregivers that have no family or friends that can help, and no money to pay for it.

Folks that are out raising awareness told me of a memory cafe and an alzheimer’s outreach center that are helping a lot of folks.

Some of my time will be used finding resources for caregivers, that may need help, and sharing it with them. Time will be spent also learning how to find those caregivers that may have a need for the information.

The link below will take you to the “Starfish Story,” on this blog.

https://jackfussellacrosstheland.wordpress.com/2017/11/05/the-little-girl-and-the-starfish/

the flow of money needs to remain steady #ENDALZ

There has been speculation that some lawmakers may not want to increase funding for finding cures and treatments because they don’t see enough good things, at the moment, coming from science. If that is the case, I don’t think they understand how it works.

If you give someone an hour to do four hours worth of work, and then you’re disappointed they did not finish, you may have a thinking problem. The money from Congress is never steady enough, it’s so piecemealed. Institutional knowledge is lost all over the country, scientist are going to other jobs.

what confounds me about lawmakers

is them having a committee meet, have expert witness speak and only a couple of the lawmakers show up. I just don’t think they really appreciate or understand the importance of hearing from folks in the trenches. I don’t understand this. I know they have much to do, but something is just not right with this. If you let someone come speak, it certainly must mean you want to hear them, but then some seats are empty.

This post is not meant to be sarcastic, I just really don’t understand. I will try to learn more.

the Alzheimer’s Association 24/7 Helpline #ENDALZ

I have ended up asking for feedback quite a few times, and the feedback is always good. The standard post from Across the Land is as follows :

“If you need information concerning Alzheimer’s disease, take time to call 1.800.272.3900 anytime. The call will be answered by a trained counselor for the Alzheimer’s Association.”

When we tell folks about that number is when we the most useful.

Sharpen the Saw or learn to cope . . . . .

Folks are constantly telling caregivers – “Remember to Sharpen the Saw.” As a matter of fact, I’ve said those words many times. They’re always polite, always smile and say – “thank you.”

Some caregivers may not be able to “Sharpen the Saw.” Those are the ones that need to learn as many coping mechanisms as possible.

If you, the reader, or someone you know, may need information concerning Alzheimer’s disease, take time to call 1.800.272.3900 anytime.

they had to call the police #ENDALZ

I’ve been told several times about alzheimer’s patients becoming irrational, confused and combative, to the point the caregiver felt forced to call 911. I can’t imagine the feelings that go with that, so many things could go wrong.

That phone call, to the police, changes the whole dynamic, for the patient and the caregiver, and that call, must be made.

From what I read and hear, Law enforcement agencies across the U.S. are diligently working to increase their knowledge and awareness of Alzheimer’s and Dementia situations.