Category Archives: Caregiving

I asked myself this the other day . . . . .

Like many nights, night before last something woke me, not sure what, but a question came to mind. What is my best advice to a new caregiver?

Ian Kremer posted this a few hours ago, it’s a graphic, does the work of a lot of words.

My best advice for a caregiver, yep, get mentally tough.

you’ve seen one caregiver, you’ve seen one caregiver #ENDALZ

Many times the quote has been said . . . “If you’ve seen one alzheimer’s patient, you’ve seen one alzheimer’s patient.”

Is it the same for caregivers? Of course it is. Circumstances of all kinds exist.

For me, I’m thinking, this will be a “work in progress” event.

Up to now, it’s going well.

Helpline

If you need information concerning Alzheimer’s disease, take time to call 1.800.272.3900 anytime.

The Alzheimer’s Association Helpline operates 24 hours a day, seven days a week, in 140 languages. Their staff is highly trained and knowledgeable about all aspects of Alzheimer’s disease. Call if you have questions about:

  • Alzheimer’s disease or memory loss, medications and treatment options, brain health and care options
  • How the Association can help you
  • Caregiving tips and respite care options
  • Services available in your community and referrals

You can also call for emotional support –– as often as you need. They know that living with Alzheimer’s can be overwhelming at times. Remember, they are there for you –– all day, every day.

slow down, breathe deep, and think

If you have not been a caregiver, it just doesn’t resonate. Of course, any activity we haven’t participated in, probably doesn’t. I need to remember that, for my own piece of mind, and maybe then my unnecessary feeling of frustration I experience every once in awhile, will subside, in fact, I know it will. That takes, for me, slowing down, and thinking. I have the desire within me to do just that.

I am a work in progress, and it does feel good to know I really am getting better at this caregiving job.

the ??????? Project

Today, after talking with an interested party, we decided to move forward, copy the plan my friend used in 2010, and see where it puts us. This would put our little bit of resources directly in the hand of someone in need. We will meet soon, share ideas, give it some time, and go from there.

This is about caregivers. This quote comes to mind.

Sharpen the Saw or learn to cope . . . . .

Folks are constantly telling caregivers – “Remember to Sharpen the Saw.” As a matter of fact, I’ve said those words many times. They’re always polite, always smile and say – “thank you.”

Some caregivers may not be able to “Sharpen the Saw.” Those are the ones that need to learn as many coping mechanisms as possible.

If you, the reader, or someone you know, may need information concerning Alzheimer’s disease, take time to call 1.800.272.3900 anytime.

they had to call the police #ENDALZ

I’ve been told several times about alzheimer’s patients becoming irrational, confused and combative, to the point the caregiver felt forced to call 911. I can’t imagine the feelings that go with that, so many things could go wrong.

That phone call, to the police, changes the whole dynamic, for the patient and the caregiver, and that call, must be made.

From what I read and hear, Law enforcement agencies across the U.S. are diligently working to increase their knowledge and awareness of Alzheimer’s and Dementia situations.

helping a neighbor, that had alzheimer’s #

I spoke on the phone with friends from Arkansas, I think it was yesterday. Everytime I think of them, I think of their story, their friend.

A few years back, one of their neighbors needed help, alzheimer’s disease was doing its thing. For seven months these folks were at his house as much as possible, helping a neighbor.

a make believe note to the doctor #ENDALZ

I read a lot:

I wonder if this make believe scenario could happen. . . . . . The caregiver and the parent arrive at the doctors office, the caregiver made the appointment, the parent has alzheimer’s. A note is passed to the receptionist. Here is what is written on it.

Dear Doctor. I have been a 24/7 caregiver for my parent for six years. It’s been three years since my parent recognized anyone. Incontinence has been part of our lives for the last year and a half. The resistance towards me helping is growing. If I don’t help, my parent will just sit around in that situation for hours. In fact, it almost seems to sedate my parent. Doctor, my parent is five foot eight inches tall and weighs one hundred and sixty pounds, doesn’t stop, always on the move, sleeps occasionally, I never know when, never know how long. I have no resources, we barely get by, I have no help. I don’t want to put my parent in a home because I think they will handle the situation with chemicals (medication). I don’t want that, but, and this is a big but, I’m asking you to do the same, unless you can tell me something else that will solve this situation. Doctor, I’m tired, worn down, I need some sleep. I need some help, and yes I know that the more medication, the more chances of my parent falling. Doctor, I can’t help my parent any, if I am dead. Is there anything we can give my parent, that will help me get some rest?

Caregiving is hard in at least two ways, watching a loved one suffer and getting worn out.

A quote – about alzheimer’s #ENDALZ

“Caring for an Alzheimer’s patient is a situation that can utterly consume the lives and well-being of the people giving care, just as the disorder consumes its victims.” » Leeza Gibbons