Category Archives: Down

August 11, 2018 – Down syndrome

My passion for children born with Down Syndrome, and their families is strong. There’s not a lot of action I can be taking right now, but I feel good doing what I can, with plans to do more in the future.

Mom will be 90 years old in October and I will be 68 in the same month. Of our little family, it’s just her and I left. We keep each other safe and do a pretty good job of it.

Both of us had connections with Down syndrome in the past.

Wilson went for a Walk today

Miles for the Special Olympics

  • Charity Miles
  • Began March 1, 2018
  • 621 miles . . . . more to come

From Wikipedia

The Special Olympics is the world’s largest sports organization for children and adults with intellectual disabilities, providing year- round …
Origins: Camp Shriver
Founded: July 20, 1968
Founder: Eunice Kennedy Shriver

Will people with Down syndrome unlock the mystery of Alzheimer’s disease?

Michael Clayburgh has a long family history of Alzheimer’s and his grandfather died from the disease.

Clayburgh is now on the front lines of unraveling the causes of the disease that has so devastated his family because of a condition he carries — Down syndrome

The paragraph above came from the article the link below will take you too

https://goodmorningamerica.com/wellness/story/people-syndrome-unlock-mystery-alzheimers-disease-55942847?cid=social_fb_gma

the NIH and Down syndrome

This legislation provides NIH with the opportunity to not only expand its current efforts on Down syndrome and commonly co-occurring conditions in individuals with Down syndrome that are also seen in the general population, such as Alzheimer’s disease/dementia, autism, cataracts, celiac disease, congenital heart disease, diabetes, and immune system . . . . .

The above portion of a paragraph come from the NIH article the link below will take you to.

https://www.nih.gov/include-project/include-project-research-plan

Milestone June 11 2018 Special Olympics

I enjoy reaching special places such as the 500th mile mark for the Special Olympics. The actual number after todays miles is 514. It feels good and I appreciate the Charity Miles folks for their application. The app makes it easy.

Resting on my laurels for a few minutes.

who was Linda Crnic?

CU Professor Linda S. Crnic of pediatrics and psychiatry died on September 11, 2004, from head injuries suffered in a biking accident in Oregon. She was 56. Dr. Crnic was born on March 29, 1948, in Fort Wayne, Indiana, the daughter of Herman and Patricia Smith. She married Stan L. Wilkes.

“Linda understood better than most, the power of putting together a broad network of scholars within and across campuses,” Jones said. She was also active with Down syndrome families, working locally and traveling with them to Washington, DC., to make the case for better support, care and research. Linda’s energy and breadth of vision will be difficult to replace.

 

All of the above came from Wikipedia

Down syndrome and a memory

Many years ago our family had, as a regular guest, a little girl that was born with down syndrome, and she was fun to be near. Once, one of us told her something we needed her to do, or not do.

She was very young and she stopped in her tracks, put her hands on her hips, and said “you are not my mama”

We had a lot of good times with her, as we did other children that came into our lives.

5/17/2018 Walking for Down Syndrome

I was a little later than usual getting out on Highway 80, and it looked like rain may fall, but it didn’t. I walked through the heart of Talbotton and on towards Geneva.

I found an old motel, kind of the same as the Route 66 ones. I want to learn more, much more, about U.S.Highway 80, and I sure have the “sit down” time.

“Beauty is and always will be blue skies and open Highway”     Dave Hickey

5/16/2018 Walking for Down Syndrome

Up early and walked in Roberta, had breakfast, cleaned up the kitchen and we headed west, parked and I jogged and walked towards Columbus, Georgia. I made it into Talbotton and we headed home in a hard rain.

While I was walking a young man in a pickup stopped to warn me of some bad weather heading our way, and he was dead on.