Category Archives: Helpline

the helpline and the fire department 

I recieved a call yesterday from a lady that has been a 24/7 caregiver for 8 years. She spoke at one point about helplines. She said they have never helped her and have no value. 

I went for a short walk and pondered. I’ve gotten so much feedback with praise concerning helplines. 

I walked and this thought came to me, an analogy:    Down the road from mom’s is a fire department. A sturdy looking building, clean modern equipment and a well trained staff. They have never helped me. I have never needed them. 

Am I grateful they are there? Yes, because they have helped others, put out fires, saved lives and save our possessions. Do I appreciate them? YOU BET I DO! THOSE FOLKS ARE ABSOLUTELY AWESOME! 

I know they will help anyone they can. I know they would help me. 

What I’ve heard about helplines:

  • I needed someone to talk to and they listened, for a long time 
  • I had never heard of daycare and can afford it a couple of times a month. The lady on the helpline told me about daycare. It’s a part of our lives now.
  • Had no idea that support groups had the ability to change my life
  • I wanted to know how research was going and if I could help by being in a clinical trial. I am in a clinical trial now and have been for over a year
  • I thought I was supposed to try and set my dad straight and changing that one behavior changed our lives
  • They arranged to meet with my family to explain what was coming 

This could go on and on. Maybe they can help you, maybe not. I hope they can. 

Judy (false name) and I talked again last night and she gave permission to speak covertly about our conversation.  

I’m Grateful for the Fire Department and the Alzheimer’s Association. 

Advertisements

an important number for Alzheimer’s caregivers 

If you need information concerning Alzheimer’s disease, let these folks become your partner in care. 

Empathy from a stranger #ENDALZ 

Empathy is seeing the world as someone else does. When you have empathy, it means you can understand what a person is feeling in a given moment, and understand why other people’s actions made sense to them. It doesn’t mean you agree with them. 

Empathy gives a basis for a relationship, in certain situations. It helps ward away arguments. It takes time and that shows a level of caring.

The Alzheimer’s Association’s 24/7 Helpline has been a good tool for me. They make me feel like I was worth listening to, and that my feelings were similar to those of others.