Category Archives: Helpline

Helpline

If you need information concerning Alzheimer’s disease, take time to call 1.800.272.3900 anytime.

The Alzheimer’s Association Helpline operates 24 hours a day, seven days a week, in 140 languages. Their staff is highly trained and knowledgeable about all aspects of Alzheimer’s disease. Call if you have questions about:

  • Alzheimer’s disease or memory loss, medications and treatment options, brain health and care options
  • How the Association can help you
  • Caregiving tips and respite care options
  • Services available in your community and referrals

You can also call for emotional support –– as often as you need. They know that living with Alzheimer’s can be overwhelming at times. Remember, they are there for you –– all day, every day.

the Alzheimer’s Association 24/7 Helpline #ENDALZ

I have ended up asking for feedback quite a few times, and the feedback is always good. The standard post from Across the Land is as follows :

“If you need information concerning Alzheimer’s disease, take time to call 1.800.272.3900 anytime. The call will be answered by a trained counselor for the Alzheimer’s Association.”

When we tell folks about that number is when we the most useful.

Sharpen the Saw or learn to cope . . . . .

Folks are constantly telling caregivers – “Remember to Sharpen the Saw.” As a matter of fact, I’ve said those words many times. They’re always polite, always smile and say – “thank you.”

Some caregivers may not be able to “Sharpen the Saw.” Those are the ones that need to learn as many coping mechanisms as possible.

If you, the reader, or someone you know, may need information concerning Alzheimer’s disease, take time to call 1.800.272.3900 anytime.

a caregiver story

she came out on U.S.Highway 70 to tell me she was a caregiver for her mom, and that she, as the caregiver, was struggling some. She had not heard of the Alzheimer’s Association, so she took one of my cards and agreed to give me some feed back.

A couple of months later she phoned me to say she made the call, listened, heard something she liked and had already attended two support group meetings. The last time we chatted she is still involved with the Alzheimer’s Association.

This happened in 2013 while I was crossing America.

the helpline and the fire department 

I recieved a call yesterday from a lady that has been a 24/7 caregiver for 8 years. She spoke at one point about helplines. She said they have never helped her and have no value. 

I went for a short walk and pondered. I’ve gotten so much feedback with praise concerning helplines. 

I walked and this thought came to me, an analogy:    Down the road from mom’s is a fire department. A sturdy looking building, clean modern equipment and a well trained staff. They have never helped me. I have never needed them. 

Am I grateful they are there? Yes, because they have helped others, put out fires, saved lives and save our possessions. Do I appreciate them? YOU BET I DO! THOSE FOLKS ARE ABSOLUTELY AWESOME! 

I know they will help anyone they can. I know they would help me. 

What I’ve heard about helplines:

  • I needed someone to talk to and they listened, for a long time 
  • I had never heard of daycare and can afford it a couple of times a month. The lady on the helpline told me about daycare. It’s a part of our lives now.
  • Had no idea that support groups had the ability to change my life
  • I wanted to know how research was going and if I could help by being in a clinical trial. I am in a clinical trial now and have been for over a year
  • I thought I was supposed to try and set my dad straight and changing that one behavior changed our lives
  • They arranged to meet with my family to explain what was coming 

This could go on and on. Maybe they can help you, maybe not. I hope they can. 

Judy (false name) and I talked again last night and she gave permission to speak covertly about our conversation.  

I’m Grateful for the Fire Department and the Alzheimer’s Association. 

an important number for Alzheimer’s caregivers 

If you need information concerning Alzheimer’s disease, let these folks become your partner in care. 

Empathy from a stranger #ENDALZ 

Empathy is seeing the world as someone else does. When you have empathy, it means you can understand what a person is feeling in a given moment, and understand why other people’s actions made sense to them. It doesn’t mean you agree with them. 

Empathy gives a basis for a relationship, in certain situations. It helps ward away arguments. It takes time and that shows a level of caring.

The Alzheimer’s Association’s 24/7 Helpline has been a good tool for me. They make me feel like I was worth listening to, and that my feelings were similar to those of others.