Since I have returned from the crossing last year, I have noticed that I rarely talk with alzheimer’s caregivers anymore. I have talked with a few, but not many. I have talked with more that were caregivers in the past. I have talked with a lot of people that know people dealing with alzheimer’s situations. On the trip across last year, I talked with hundreds and hundreds of “current caregivers”
What is going on here? On the trip last year, the Alzheimer’s Association was able to get me on 43 local TV shows. Them and others, were able to get me in roughly 100 newspaper articles. Most of the newspaper articles were printed before I came through their area of coverage. People were expecting me. I think they felt like I was trying to help. They got someone to watch their alzheimer’s patient long enough to come speak to me beside the road. I told hundreds of them about the help the Alzheimer’s Association offers. I listened to their stories and they thanked me for the information, but mainly for listening.
Why aren’t current caregivers talking to me now? Most have no idea what I am doing. I am rarely in a newspaper now and never on TV. Even if they knew what I was doing and where I was they may not be able to travel that far to speak to me.
All of this thinking has made me realize that most people that are the age of caregivers, do not do a lot on the internet. I have asked and most do not. I actually called several that I met going across last year and all but one told me they rarely ever get near a computer.
The Alzheimer’s Association has an awesome website. It is so full of very helpful information that will help caregivers deal with the situations they are dealing with and even give them Hope, but a lot of caregivers will never even see it. I hope some of their family will find out about it and tell them things that may help, that they learn from the website.
That is why we need the Helpline. 1-800-272-3900 and they can call it anytime. Most all people nowadays have a phone and can dial a number. Ah, but their is a problem. We have to let people know that help is available and that their is a number, they can call for help.
What I am doing now is helping a few things. It is keeping me fit. It is making others know they can change their own life. (if I can, anyone can) It is informing the public about this growing problem (alzheimer’s disease). I mention to most people that we have to tell our lawmakers that we need more research money and legislation that will help fight alzheimer’s. My car has the 1-800-272-3900 phone number on it. Thousands possibly see it every week.
I ramble in my thinking and it shows up in my writing, but that it is okay with me. It is who I am and in the end it helps me formulate a plan. I know I am helping in this fight against alzheimer’s disease. That is a good feeling.
I will be a walking billboard again starting January 10,2015. I will be bringing AWARENESS to the problem that alzheimer’s disease is causing, in our country and around the world.
I know I am helping in the fight against alzheimer’s disease. I know people are helping me. I have also learned the people helping me do not want thanks, they want to help. I have recently received 3 helpful gifts for the next trip. All 3 have asked to remain anonymous. I will honor their requests.
What an absolute honor for me, to be helping in something so important.
I will help find a cure for alzheimer’s disease !! I will help caregivers, both paid and unpaid !! I will have purpose in my life !!
I hope others help and have purpose !!