I heard him give a talk about caregivers. He said probably lots of people dealing with alzheimers disease in their family, have it tough, but that, in his opinion, the ones that do not have enough resources to pay for help, and have no help, have it very hard. They cannot afford to pay someone for even an hour. Don’t assume, everyone has a lot of family that can help. That’s just not true in a lot of cases. Some caregivers are on their own for days, weeks and years. No vacation, no weekend, not even a day off.
I have a friend that has faced problem after problem with health issues the last couple of years. No matter what occurs, my friend keeps going. I struggle sometimes going for a doctor visit. My friend has spent hundreds of days in the hospital. Strength.
A lot of people that helped me with this made it clear they did not want thanks or recognition. A few got angry when I recognized them anyway. I was wrong to do that.
I have worried about thanking people enough, or not calling them. I have realized those worries were all in my head.
I had talks with four people yesterday. Each made me feel like they wanted me to know, to always know, they are there for me, but it’s never been about me saying thanks or staying in touch with them. It’s been about the end result, helping in the fight against alzheimers disease. One said “As long as I believe in you, I will be here Jack, but I will always fight alzheimers disease.”
His comments energize me. I have a responsibility to do my best. I have failed at times, but failure is part of life, and I forgive myself, and will get better at my purpose, and continue on.
This is not about me. This is not about the people that have helped me.
It’s about the caregivers, the patients, the fight with alzheimers disease.
She was right. It’s not about me. It’s not about the people that helped me.
It’s about the caregivers.
1,289 people will be diagnosed with alzheimers today, in America. 66% of those will be women.
The caregivers that have very limited resources may live a 24 hour day, that is pure hell on earth, and they may live it for years.
It’s about the caregivers
I have heard that more in the last 2 -3 years than ever before. It sounds good. Is it just hype? I have realized something that is very important.
First, this quote.
“Whether you think you can, or you think you can’t–you’re right.”
I understand the meaning of this quote.
It’s the way I examine the quote about age.
If you believe that age is just a number, it probably will be, for you. If you do not believe in that, then it is not.
She said this to me “Jack, age is just a number, now get your *** back up and get going.”
I believe her and to me, age is just a number. I believe in her because I went with this saying and I improved, even though I was the same age.
she put a picture in her garage. Every time she pulled in she saw the picture of a Jeep. She seemed to always stare at it for a couple of minutes. This went on a long time. The picture began looking weathered. One day she took the picture down.
She took it down and replaced it with a picture of her New Jeep.
Think of this picture in your minds eye.
A man sitting on a bench. Children are playing all around him.They are running, jumping and smiling. Something to his right, gets his attention. It’s a little girl in a wheelchair. Her body is deformed. He looks at her eyes and notices she is watching the children play. He has seen the affects of this disease before today. He wishes he could help. There is a reason he recognizes polio. His name is Dr. Jonas Salk.
He found all the inspiration he would ever need.
Yesterday, approximately 1,289 people were diagnosed with alzheimers disease in America.
Yesterday, approximately 1,590 people died with alzheimers disease in America.
Approximately 66% of alzheimers diagnosis are women.
If you need help concerning alzheimers disease, please call 1.800.272.3900. The phone call will be answered by a trained counselor for the Alzheimer’s Association. 24/7
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“The two most important days in your life are the day you are born and the day you find out why.” Mark Twain
Todd, thank you for making this quote mean something to me.
I won’t forget the two children.They are important.Thoughts of them stay close at all times. One was three years old and the other was seven.The three old died with polio and the other with leukemia. They were not here long. As for me, I am on extra time. I recieved a second chance at life. I owe. These were my little cousins.
These two children had a mom, a dad and siblings. All of these lives were forever changed. There were grandparents, cousins, aunts and uncles . . . . . and I am sure others.
Dr. Jonas Salk (polio) and St. Judes Children’s Research Hospital (leukemia) both have a special place in my heart, and always will. I have studied the life of Dr. Salk and I have visited St. Judes twice.
My dad died with alzheimers disease. No cure. Caregivers experience a living hell for a long time. There is help and caregivers need to know of it.
The seriousness of what I will do with the rest of my life is coming to fruition. I am beginning to taste it.
I am paying back. I am keeping the promise I made, while in ICU. My dream is being replaced by a promise.
I am not looking for happiness or security. I want to make a difference. I am willing to live with the consequences of my decisions.
Covered a little bit of ground today.
We are both excited, and concerned about his surgery tomorrow. (mom’s husband) We have an early day tomorrow. He has been an inspiration with his handling of the pain.
My mom (age 87) continues to amaze me. She is a strong lady.
Spoke on the phone with two individuals that crossed America on foot. We have a lot in common.
My brother told me once that no matter what occurs, to always keep putting one foot in front of the other. He passed away in 2005. I imagine him looking down at me and saying “my little brother keeps going”
I want to use up everything the Lord gives me.
Thank you for reading my blog.