I’ve been doing that for 58 months, full time. (raising awareness)
Why? Probably no entity will spend lots of money and/or time solving a problem they either, don’t know about, or don’t know about the value involved. The value can be financial or emotional, or both.
No one can ever say which awareness raising broke the camels back, so to speak. With that in mind I know that what I do is as important as anything that is done. A lady in Knoxville, Tennessee taught me that. (it also tells you what you do is as important as anything anyone else does)
In the United States a lot of the money for research comes from the federal government. The lawmakers have to be informed, in every way, about the problem. The electorate must be informed also.
No part of the disease and it’s side affects can be left out. It doesn’t matter how “gross” it is.
Folks that raise awareness owe it to the patients, the caregivers, the electorate and the lawmakers to talk about it all. The connotation must be serious and reflect the realities. I reject the notion that people raising awareness must sound or look positive. I like the notion of being honest and reflecting that in body language, tonality and content of the spoken word.
I still run into many, many folks that believe alzheimer’s is only about forgetting. It’s about a lot more than that.
Google “alzheimer’s” and read.
- Tremendous financial loss
- Family breakups
- 66% of folks involved are women
- Caregivers no longer being able to afford the medication they need for themselves
- Caregivers that must watch a patient 24/7, for years
That’s just to name a few problems associated with alzheimer’s.
Back to why. My dad died with alzheimer’s, along with millions of other folks. There’s no cure. There’s no proven way to prevent alzheimer’s. It is said that if large amounts of progress is not made soon, by 2050 alzheimer’s could bankrupt our system.
What matters most though is the suffering. Why are we suffering? What caused alzheimer’s? Why don’t we already know?