Tag Archives: Down Syndrome

Wednesday December 5, 2018 blog post

How do I define “Never Give Up?”

It means believing in myself, being willing to accept failure and learning from it, not compromising on important values, walking the walk I suggest, and maybe most importantly, to me, to Keep Going, Keep Setting Goals, no matter how much I fail or succeed.

Some pictures from today:

The hourglass represents a question Mark asked of me. “Jack, we all get sand in our hourglass, and we never know when it will run out. What ya gonna do with yours?”

Since June 1, 2012 the old guy has been on foot, raising money and awareness for charity. Today, the 19,000 mile mark was reached.

Keeping mom safe, myself healthy and raising money and awareness concerning Down Syndrome.

I came back to post a collage with the stroller and train tracks.

Tuesday December 4, 2018 blog post

“Go to your Strengths Athlete.” I read that in the book, and enjoy how it makes me feel when thinking of it.

The Charity Miles application says this old guy (me) was on foot over 8 miles yesterday.

Here are some pictures . . .

Mom walked a mile

Brave Monkey- one of my companions on the Epic Journey

On page 37 in the book Momentum, Mark speaks of one mans explanation of the word Athlete.

What is my mission? Staying healthy, keeping mom safe, and raising money and awareness concerning Down Syndrome.

Sunday December 2, 2018 blog post

I snapped this photo yesterday during a light rain. This is in mom’s yard, and she enjoys the colors.

Things are better here, and the reason for the improvement, is my attitude. Being a caregiver has been tough for me because of my impatience. Mom deserves better and I will get there, I have no doubt.

The Charity Miles application continues to play an important role in my life. My miles help get some money to the Special Olympics, for the Special Olympians.

November was my most productive month this year, as far as miles go, with 255 miles on foot, according to the Charity Miles application.

My little friend was born with Down Syndrome and he is important to me. I look forward to seeing him grow!

aim high parents – Down Syndrome

Developmentally disabled children benefit from parents who aim high.

To read more, follow the link and see what you think . . . . .

https://www.bendbulletin.com/health/pulse/6588577-151/developmentally-disabled-children-benefit-from-parents-who-aim?fbclid=IwAR2xHJju-C2FSTSAkWAx3u4CFjcda_e7JqsBPkPJIJaaQ7w9f1TfnreDp8Y

yulissa-arescurenaga #downsyndrome


she is the first licensed Zumba® instructor with Downs Syndrome in the United States.

Please follow the link below to read an inspirational story

https://justanotherordinaryday.com/tag/yulissa-arescurenaga/

Pixleydust – Blog about Down Syndrome

http://www.pixleydust.com/

I enjoyed reading this article.

Will people with Down syndrome unlock the mystery of Alzheimer’s disease?

Michael Clayburgh has a long family history of Alzheimer’s and his grandfather died from the disease.

Clayburgh is now on the front lines of unraveling the causes of the disease that has so devastated his family because of a condition he carries — Down syndrome

The paragraph above came from the article the link below will take you too

https://goodmorningamerica.com/wellness/story/people-syndrome-unlock-mystery-alzheimers-disease-55942847?cid=social_fb_gma

the NIH and Down syndrome

This legislation provides NIH with the opportunity to not only expand its current efforts on Down syndrome and commonly co-occurring conditions in individuals with Down syndrome that are also seen in the general population, such as Alzheimer’s disease/dementia, autism, cataracts, celiac disease, congenital heart disease, diabetes, and immune system . . . . .

The above portion of a paragraph come from the NIH article the link below will take you to.

https://www.nih.gov/include-project/include-project-research-plan

who was Linda Crnic?

CU Professor Linda S. Crnic of pediatrics and psychiatry died on September 11, 2004, from head injuries suffered in a biking accident in Oregon. She was 56. Dr. Crnic was born on March 29, 1948, in Fort Wayne, Indiana, the daughter of Herman and Patricia Smith. She married Stan L. Wilkes.

“Linda understood better than most, the power of putting together a broad network of scholars within and across campuses,” Jones said. She was also active with Down syndrome families, working locally and traveling with them to Washington, DC., to make the case for better support, care and research. Linda’s energy and breadth of vision will be difficult to replace.

 

All of the above came from Wikipedia

Down syndrome and a memory

Many years ago our family had, as a regular guest, a little girl that was born with down syndrome, and she was fun to be near. Once, one of us told her something we needed her to do, or not do.

She was very young and she stopped in her tracks, put her hands on her hips, and said “you are not my mama”

We had a lot of good times with her, as we did other children that came into our lives.