Tag Archives: Jack Fussell

20 days into my road trip across America 

South of Gallup, New Mexico

I’ve seen 5 long distance bicyclist and 1 long distance walker. I started asking shop owners on Route 66 how many they see. The numbers surprise me. They tell me it’s several each week and that most are on bicycles. 

The memories that flood my consciousness are very satisfying. I’m on mostly the same road I jogged and walked in 2013. I must head home soon. I found what I was looking for out here. I can’t take it home with me, but I dearly wish I could

Mom is being well taken care of, and I miss her. 

Today I saw some beautiful deer, some prairie dogs and a llama. 

It rained today and I saw some awesome lightning to the northwest. 

I am a very grateful man. 

I raise awareness concerning alzheimer’s disease and money for the Alzheimer’s Association. 

miscellaneous pictures 9/4/2016 Tucumcari 

I refuse to sit idly by 

“When I don’t know what to do I run, so I run a lot”     Jack Fussell 

That’s a metaphor. I will only sit and try to decide what to do until a trigger in me announces that time is being wasted. I get up and go. Something tells me to either keep going or take another path. I find strength in the wisdom of doing something! 

In the picture above, the one with part of me in it, notice the bright alzheimer’s performance shirt. In the bottom picture notice the sign on the Bobomobile.

I raise awareness concerning alzheimer’s disease and raise money for the Alzheimer’s Association. 

I refuse to sit idly by. 

10 high profile alzheimer’s patients

Their is nobody any more important than our loved ones that had or has alzheimer’s disease. High profile folks do get more media attention, and help raise awareness. Here is a list of 10.

  1. Gene Wilder 
  2. Glen Campbell 
  3. Ronald Reagan 
  4. Pat Summit 
  5. Norman Rockwell 
  6. Sugar Ray Robinson 
  7. James Stewart 
  8. Robin Williams 
  9. Casey Kasem
  10. Perry Como

The list could go on and on, and it does. 

This post is meant to bring some reality to the thought that alzheimer’s disease may manifest itself in any of us. 

I tip my cap to you caregiver 

You have your own life, and to be a caregiver, you have put your life on hold. How can you be any more selfless than that? 

Somehow you manage to continue on, in some cases, for many years. 

The emotional and physical strength you have shown is remarkable to me. 

In many cases you have not been able to take proper care of yourself, but you continued on. 

You are the real Inspiration in my life. You are, to me, a hero. 

Selfless –concerned more with the needs and wishes of others than with one’s own 

what’s next for Jack?

Please stand up if you’ve ever had a hard time figuring out what to do next.

When I sit down, I am hit with thoughts from all over the place, and they all seem good for a few minutes and then not, killing any idea I may have had for a good planning session. It’s daunting enough trying to figure out what I want to do, let alone what I should do. 

Never mind that, I have responsibility with family and that will remain first. 

Their is good news. My family is more than willing and very able to help with mom when asked to. 

With the right planning I should be able to work on the “around georgia” project, on a fairly regular basis. 

met this long distance bicyclist 8/30/2016

Edward is from Amsterdam. He is celebrating his 66th birthday by pedaling from Chicago to Los Angeles on Route 66. 

His bike has a gear box and belt, no chain.

I raised awareness today

I drove my car a long ways on a very busy highway. The car has signs that speak of the “Walk to End Alzheimer’s”. An awful lot of folks saw those signs. I stopped to take an occasional picture and made sure to park it strategically. As usual, folks approached me a few times to speak of their connection to alzheimer’s. I gave out some cards with the 24/7 Helpline phone number on them. 

Yep, I raised awareness concerning the disease that took my dad’s life, along with millions of others. 

about Route 66 travelers (not motorized)

She has put in a lot of years on Route 66, and she says they have been good ones. 

I was curious about the long distance travelers she had herself seen. She spoke of many.

  1. walkers
  2. runners
  3. pushing strollers 
  4. carrying backpacks
  5. on horseback 
  6. with small dogs
  7. with support vehicles 

Mostly, she remembered bicyclists, and lots of them. She went on to say that some years the road was busy with these folks and then other years not so much.

She spoke of the help the travelers received and how that seemed to be such a surprise to most of them. 

Alzheimer’s – a caregiver’s wife – 8/28/2016

I spent time today listening to a ladies experience as the wife of a caregiver. 

She said the biggest change she noticed was her husband’s health. She also was aware of his slide into depression and the accompanying moodiness.

The mother and son had a quiet relationship and in her opinion, they simply tolerated each other most of their lives. Her husband’s decline was hard to witness. She helped as much as possible.

As we talked, she seemed to be reliving some of the sadness associated with such a stressful time of life. She admitted never being very comfortable with her husband’s mom. 

I ask her if she felt the strained relationship made it harder on her husband. She was very adament about making sure I knew she is not an expert, but she said she believes the strain before the caregiving was needed may have made it almost unbearable, at times.