Tag Archives: Jack Fussell

pictures of folks that do research 

remaining positive ? 

I’ve been reading about positive thinking. On the surface it sounds good. It has been a mantra for a few years now. I’m questioned about it from time to time. What exactly does it mean? How do you speak of the many horrific things going on, in a positive way? Do we just put them out of our minds? Do we pretend thousands of innocent children do not really die every day from lack of water and food? I imagine that is not what the positive thinking gurus meant, but I don’t know what their plans were. 

With alzheimer’s disease it’s the same disconnect to me. Most folks don’t know about incontinence, violence, family breakups, financial loss and even early death for some caregivers. There are a lot negative connotations associated with alzheimer’s disease. How do we speak positively about those? To raise awareness about how important it is to find prevention techniques and a cure, we must state the negatives. This has came up two times today, in messages to me. 

I need help with knowing how to speak positive about a disease that most people think is just loss of memory. 

As for me at this moment I will continue to say that changing the soiled clothing of a parent 6 to 8 times a day sucks. It also hurts when they fight back every time. 

I’m positive I care. I’m positive we need a cure. I’m positive the Alzheimer’s Association can help you. 

alzheimers caregivers 

The stories concerning alzheimer’s disease continue to be told and heard.

The word “stress” is mentioned often. Getting rest may be rare. Dreams take a back seat. 

Recently, I had an awakening of sorts. I realized how really strong, patient and persistent these folks are. No matter what occurs, they keep going. Some lose everything while making sure another person stays safe. Caregivers are selfless.

Selfless – concerned more with the needs and wishes of others than with one’s own.

P.S. These are my thoughts. 

when things change – aging, dementia …. ?

He dropped by his mom’s house. He rang the door bell and got no response. He took his key and went in. There was a pot of peas on the stove and no water in the pot. The peas were burnt black mostly. There was not much smoke yet. He made things safe and went to find mom. She was sitting in her bedroom trying to solve a puzzle. She asked immediately for his help and went on to explain the bathtub faucet will not turn off. It’s been running for some time now, she said. He walked in the bathroom, reached down and turned the water off. 

alzheimer’s – bits and pieces 

she told me that things used to be so automatic. Not anymore, she says she has to watch everything. She sleeps a lot, she says. 

Watching her expressions and seeing tears fill her eyes and run down her cheeks was hard. She was 93 years old the last time we spoke. She gave birth to 12 children. 

My grandmother Fussell would cry every time we drove off. Later, 7 of her 12 children would exhibit signs of alzheimer’s disease. 

Went home to Amicalola Falls today

I volunteered and/or trained at the park for over 13 years. The staff, the visitors, the wildlife and the endless beauty became my home.

The view from the top of the falls looking south

As always, this visit, I labeled a homecoming, led to conversations with park visitors. I enjoy talking with them, taking pictures, posting them and looking at them later. Great memories. 

This is a mixture of American and Scottish students. They are part of an exchange program.

These two, and the folks behind them were at the park on a field trip today.

 Being here today was emotional for me at times. I have many memories here, so many beginnings and a lot of endings.

Park personal, as always, made me feel welcome and loved. They always have, but today seemed very special to me.

Mark drove me to the park. Him and his wife Janice epitomize who a visitor would hope to come upon, at any park. 

This picture of Mark and I was taken behind the Visitors Center. 

This was a great day and one I will not soon forget. I stood near the telescope at the reflection pond, looking up at the falls, and remembered back to 2001, when I stood at the same place. That was a beginning for me. Today I came home. 

Alzheimer’s research – Dr. Steve Barger 

After hearing of the recent grant from the National Institute of Health for alzheimer’s research, I called Dr. Barger. The grant is for over $10 million dollars and was awarded to the University of Arkansas Medical School in Little Rock. I offered my congratulations to him and all of the staff at the Reynolds Institute on Aging and the University of Arkansas Medical School. I told him how much I appreciate both their attitude and work. I don’t have to look far for my heroes. 

Sue Griffin PhD will lead the team. 

I knew of this grant because a friend on Facebook sent me a link. Here is the link. 

http://www.thv11.com/mb/news/local/uams-gets-10-million-grant-to-study-alzheimers-disease/329203430

Cystic fibrosis and leukemia 

It was such a pleasure and an honor to spend time this evening with Jody and Amy at my grandson’s soccer practice. They are both always so kind. The ability they have to endure so much, puts me in awe of the strength they muster every day. Both have spent time learning everything they can about their respective nemesis. They continue to inspire me as much as anyone I have ever known. 

Alzheimer’s research – UAMS #ENDALZ 

One of my Facebook friends, Kaitlyn Stell, sent me this link a few minutes ago. 

http://www.thv11.com/mb/news/local/uams-gets-10-million-grant-to-study-alzheimers-disease/329203430

This is so cool to me because I had the pleasure of spending time with the folks at the University of Arkansas Medical School and I am aquanted with the folks I am happy for. The Alzheimer’s Association made introductions. This is AWESOME. I’m betting their exited.

Sitting here thinking how excited I would be knowing this grant is going to end up helping millions of people. In my opinion, none of the grant money is ever wasted. 

being fit is key!

I work constantly at remaining physically and mentally fit. A Navajo Indian Doctor told me that being fit is a prerequisite for being able to do almost anything for a long time and doing it well. 

The reading and constant interactions I have with others is good for my mental health. 

This raising awareness job will take a long time. Being fit is fundamental.